For Children and Teens With PUC
Having pediatric ulcerative colitis (PUC) doesn’t mean you have to miss out on all the fun of being a kid. You don’t have to worry about having symptoms all the time. The important thing to remember is to be open and honest, and to discuss how you’re feeling with your parents and your doctor. They want to know how your symptoms are affecting your life, so they can help find the best care and treatment for you.
It can also be helpful to let other adults like your teachers and the school nurse know you have PUC. That way, they’ll understand when you’re not feeling well.
So what is REMICADE®?
REMICADE® is a type of medication that works by blocking a protein in your body that causes inflammation  in your intestines. This inflammation contributes to the symptoms of ulcerative colitis. REMICADE® helps reduce inflammation.
How does it work?
Only a doctor or nurse can give you REMICADE®. That means you have to go to your doctor’s office or a place called an infusion center to get it. They’ll hook up an IV infusion  to your arm or hand to let the medication drip in, kind of like you’ve seen on TV.
We know it’s kind of unusual to get medication through an IV. When medication is infused, it goes straight into your bloodstream and gets to work. Getting an infusion may seem weird at first, but you’ll have someone nearby during the infusion.
Please read the Medication Guide  for REMICADE® and talk to your parents and your doctor about it.
How long does an infusion take?
Your infusion with REMICADE® will take at least 2 hours, so you’ll have time to kick back, relax, listen to the latest tunes, or even do a little schoolwork while you receive your infusion. So be sure to wear comfortable clothes.
How often do I have to have infusions?
After the 3 starter doses, you will only receive REMICADE® once every 8 weeks . That’s about every 2 months, or 6 times a year.
How long will I feel better?
In a 1-year study of children with PUC, many felt symptom relief within 2 weeks of their first treatment. And for most children who continued treatment with REMICADE® every 8 weeks, symptom relief was seen at the end of the study.
How should I talk to my friends about PUC?
Having PUC is pretty personal, and you probably feel a little self-conscious about it. Discussing it can be uncomfortable, so you may only want to talk with your family and closest friends. Or maybe you want to tell everybody so you don’t have to worry about keeping it a secret. Whatever you decide to do is the right choice because it’s your choice.
Here are a few ideas that can help make it easier to tell your friends about PUC:
- Speak from your heart: If you’re nervous about talking about PUC, say so. Real friends will appreciate your honesty
- Think about what you want to say: Maybe you want to say that PUC is a serious condition that causes you to have stomach pain and makes you really tired. Maybe not. But figuring it out ahead of time will make it easier to talk about
- Explain the symptoms: Everyone can relate to stomach pain, fevers, and fatigue. As quiet as they may keep it, most of your friends can relate to having diarrhea, too, but how much you share is totally up to you
- Answer questions: It’ll stop your friends’ imaginations from running wild, and let you know if they understand what you’ve been saying. The main thing they’ll probably want to know is that PUC is not contagious—they cannot catch it from you
- Try to have a sense of humor: If you can make a joke or laugh, chances are you can make your friends feel more at ease, too
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